Friday, April 29, 2011
Yesterday was harder...
After my workout on Wednesday I was just beat. That translated into yesterday being draining on me as well. I had a great time with Julie and Logan in his 'Pioneer Day' at school. Julie and I helped the kids do some leather tooling to make 'Lewis and Clark Journals'. It was a lot of fun, but with the sitting on the ground and such my legs were not very happy. No big deal though, everything is normal that way.
Monday, April 25, 2011
Yes I know...
For those of you who actually read this blog, it has been a long time. Too long I know because if I don't keep up with this, it becomes of less value. Anyway, the MS Walk this year was great. Our team, Heritage Hounds, raised just over $3000 this year and again made Elite Team status making our third year in a row for that distinction. I really appreciate all of the donations we received.
My symptoms have been coming back as expected with spring and heat. We went to a family swim this last weekend at the swim school the boys attend and that always wears me out.
The drug trial is really a non-event at this point. I take my pill every day and have my blood work every 6 weeks now (rather than every 2). The trial should go for another 6-12 months as the exact end date is not yet known. That's ok though, as I feel like I am getting excellent care so the longer the better in my opinion. I certainly understand why MS patients like being in trials.
My weight has plateaued at about 187 and while I'd like to lose a bit more, it may be easier to gain muscle mass rather than lose fat at this point to change my body fat %.
My symptoms have been coming back as expected with spring and heat. We went to a family swim this last weekend at the swim school the boys attend and that always wears me out.
The drug trial is really a non-event at this point. I take my pill every day and have my blood work every 6 weeks now (rather than every 2). The trial should go for another 6-12 months as the exact end date is not yet known. That's ok though, as I feel like I am getting excellent care so the longer the better in my opinion. I certainly understand why MS patients like being in trials.
My weight has plateaued at about 187 and while I'd like to lose a bit more, it may be easier to gain muscle mass rather than lose fat at this point to change my body fat %.
Friday, February 25, 2011
Just another day
I hadn't posted that going low-carb was a major failure. After about 8 days I was about to go insane. I'm glad that it is over. I didn't really lose any weight. I don't think I'll try again as it is not worth that much frustration unless it was a huge weight loss. Since that didn't happen, no more of that.
The nightwave has really helped I think as I've had now three good nights of sleep, much needed. I'll keep thinking about it though, just to make sure it isn't a fluke.
Work is going well. There is a lot to do, but I am getting to do more of what I enjoy, even though it means more evening / night work.
I'm starting to notice more loss of muscle control in my left leg and a little in my arm. My left calf muscle really does not like obeying. Marsha and I are working to get it to figure itself out so we can keep working it. My left arm has had some issues in the past with fasciculation. That isn't the thing now, it is just a difficulty in fine motor control / fatigue when I'm working out. I think we can get it back in the game, but it will be focused on more heavily than before.
The nightwave has really helped I think as I've had now three good nights of sleep, much needed. I'll keep thinking about it though, just to make sure it isn't a fluke.
Work is going well. There is a lot to do, but I am getting to do more of what I enjoy, even though it means more evening / night work.
I'm starting to notice more loss of muscle control in my left leg and a little in my arm. My left calf muscle really does not like obeying. Marsha and I are working to get it to figure itself out so we can keep working it. My left arm has had some issues in the past with fasciculation. That isn't the thing now, it is just a difficulty in fine motor control / fatigue when I'm working out. I think we can get it back in the game, but it will be focused on more heavily than before.
Sunday, February 20, 2011
Tired like crazy
I have not been sleeping well. Certainly that makes me more tired than usual.. Yesterday was particularly bad for fatigue. I was just completely dead tired the instant I got up. We had the family birthday party and I had a good time. Today has been little better. Julie bought me a NightWave so I'll post about how that helps me sleep. I'm excited to try it tonight.
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