Saturday, February 27, 2010

Still feel terrible

No improvement and most likely worse. I went to bed about 9 last night and slept until 4 when I got up remedicate. I got to sleep in, read, and nap until I got up at 2pm. I'm still coughing and have a sore throat. I've read a lot of the Hitchhikers Guide today. I'm starting to think in guide-ese at an improbability factor of two to the power of four hundred thirty nine to one against. I'll write again tomorrow about how I'm doing.

Friday, February 26, 2010

I can't call it yet

I'm still not feeling well. A little cough and sore throat, still very tired. Now I cannot be sure of what my body is doing. Maybe I caught something. Maybe not. I'll let you know as time progresses, but for now I'm saying I'm ill. :)

Thursday, February 25, 2010

A pattern is emerging

I've done a lot of maneuvering with my shot timing and one thing remains consistent... I feel terrible on Thursdays. Just right awful. Now I'll admit it is less now than when I was taking my shot at 5p.m. or so on Wed. nights and having to suffer through the nights with fevers and such, trying to take Ibuprofen by waking myself up. Now I am taking the shot early on Wed. morning and keeping my Ibuprofen levels up is a much easier task. That said, Thursday is still a bad day. So, I've come up with a theory.

It goes like this: No matter when I take the shot, and that being in my leg muscle, my body starts trying to absorb it. While I maintain the Ibuprofen to keep my fevers at bay, my body is doing well absorbing at whatever trickle rate it does. BUT when I go work out on Wed. night with Marsha my leg muscles do what I ask of them and keep me from falling all over the place but it gets the blood flowing 'faster' and changes my rate of absorption (or so I think) thereby making me ill the next day. Next week I'm going to take my shot on Thursday morning and see how I feel Friday. If all goes well, that may be the change I have really been looking for.

Tuesday, February 23, 2010

Stiff neck today

I must have slept funny last night. I can barely turn my head to the left. That is such a weird thing to have happen. I know it is common enough I would think everyone has suffered through it at least a few times. Just thought I'd mention it.

My neuro appt. got moved to April 22nd as my Neuro cancelled for my March 16th appt. No big deal as it is just a follow-up. I think I'll ask him about another round of steroids when I do get there. I would really like to do that again.

Monday, February 15, 2010

New week, same story

I am just tired all of the time. Over the last couple of weeks I was blaming it on my work schedule with late nights and such being common. Recently though it hasn't been doing that and I still cannot seem to get rested. I'm alert (or so I claim) but I just feel so fatigued. I was talking to a friend yesterday and (I know I've said it here before) I was explaining how I felt. The whole idea of fighting gravity is such a good visual picture. It just seems to take effort to move at all, let alone any meaningful activity. Lifting my arms off of the desk feels difficult and even as I am still, I feel pulled into whatever I am resting on. My arms feel bolted to my desk. I feel like a blob of silly putty, how it kind of runs into a puddle and doesn't want to hold its shape. I've felt this way before, but I guess I've had better excuses than now.

At any rate, I really appreciate how many people are concerned with how I am doing, but all in all I am not materially different form day to day or week to week. There are changes as my activity levels change, but overall I change very little. Perhaps if I look back at the last year or two I can identify differences, but other than how fatigued I feel 'today', my symptoms are fairly static.

So ask me how work is going or the kids are doing. I'm doing fine. I cannot change the way I feel and neither can the doctors or anything like that. To be sure, pray, but I am not nearly as 'sick' as some people may think and I understand that it make some people uncomfortable to talk to a person who has a chronic illness (I can only imagine it is similar to the way I feel about talking to people in wheelchairs. It is obvious there is 'something' there and how do you handle the 800lb. gorilla in the room.). You may think that by bringing up how I am makes you seem more compassionate, or by the opposite, NOT bringing it up means you don't care. I certainly don't feel that way, and wouldn't want you to. I know that you care about me by you asking me about all sorts of things going on in my life, and while my MS is certainly out there, you shouldn't feel like you have to bring it up.

Tuesday, February 9, 2010

Today is another day

My shingles are still here but much less painful. My back is not irritated like before; the pain has migrated to my side. Sleep is still the most irritating thing but overall it is not a big deal.

I have been boxing Julie on the Wii and that is very exhausting. I've been trying to do 30 mins / day of cardio on the Wii but I don't have the daily habit that Julie has yet.

Just got our information about the MS Walk for this year. I'm excited about raising money again.

I went and saw Colin again this past weekend. Was good just to have dinner and chat.

I really do not have a lot to say, my MS is what it is and my fatigue during the day is currently my biggest challenge. My balance is off as I would expect it, and by the end of the day I am just worn out. I've been working some late nights in the last week or so and that contributes to that. I have had pretty good success with my shots on Wednesday morning so I plan on continuing that habit at this point. It seems to take less ibuprofen to deal with my side effects when I'm up and about.